Caregiving and Palliative Care Resource List

Note: These resources include links to external websites. We do our best to make sure these links are accurate and up to date. However, CHPCA is not responsible for any of the content hosted on external websites or for their accuracy.

To suggest new resources to include, contact us at [email protected].

CHPCA Palliative Care Info Sheets

1. What is Palliative Care?
2. When Should I Think About Palliative Care?
3. Where Can I Find Palliative Care?

A Caregiver’s Guide: A Handbook About End-of-life Care, Hospitallers of St. Lazarus of Jerusalem and Canadian Hospice Palliative Care Association

Caregiver Compass, SE Health

Carechannel, SE Foundation and Elizz

The Waiting Room Revolution podcast

Caregiving Guides and Tools, CREGÉS – Centre for Research and Expertise in Social Gerontology

What Happens When Someone is Dying, Good Life, Good Death, Good Grief – Scottish Partnership for Palliative Care

The Process of Dying, Highland Hospice (Scotland)

Encouraging an assets rather than a deficits approach to the last phase of life, Scott A. Murray

Bowel and Bladder Problems when You’re Living with a Terminal Illness, Marie Curie (Britain)

Providing Care and Comfort at the End of Life, National Institute on Aging (USA)

EI Caregiving Benefits, Government of Canada

Advance Care Planning Canada:

• Living Well, Planning Well: An Advance Care Planning Resource for Accessing Your Rights
• Comfort Care at the End-of-Life for Persons with Alzheimer’s Disease or other Degenerative Diseases of the Brain, SPA LTC, Advance Care Planning Canada, Canadian Hospice Palliative Care Association
• Resource Guide for Home and Community Care Providers

Illness Trajectory Resources (Dementia, Heart Failure, Frailty, Advanced Lung Disease and Advanced Kidney Disease), SPA LTC

My Voice in Action: A Workbook For Advance Care Planning (Easy Read Version), Fraser Health (British Columbia)

Planning for My Care: For People who identify as Two-Spirit and LGBTQ+, Canadian Virtual Hospice

My Wishes, My Care, BC Centre for Palliative Care

My Wishes Alberta Workbook, Covenant Health Palliative Institute

Healthcare Directives: What You Really Need to Know, Canadian Medical Protective Association

Preparing for the Journey: Caring for Indigenous Peoples Who Are Seriously Ill, Centre for Education and Research on Aging & Health, Lakehead University

LivingMyCulture.ca, Canadian Virtual Hospice

First Nations Caregiver Support Education, Hospice Palliative Care Ontario

Coming Full Circle, First Nations Health Authority and Canadian Virtual Hospice

Your Care, Your Choices, First Nations Health Authority

Elder Wellness, First Nations Health Authority

Canadian Centre for Caregiving Excellence (CCCE)

• Caregiver Resources List

Caregiving Matters

• Caregiver Resources Directory

Canadian Home Care Association (CHCA)

• Carers Canada, a program of the CHCA

Victorian Order of Nurses (VON)

• Respite and Caregiver Support

Young Caregivers Association

L’Appui proches aidants [Quebec]

• Resource Directory

Caregivers Alberta

Compassionate Alberta, a project by the Covenant Health Palliative Institute

• Additional Community Support Tools [Alberta, and Canada-wide resources]

Caregivers Nova Scotia

• Palliative and End-of-life Care Resource

Family Caregivers of British Columbia

The Ontario Caregiver Organization

Helpful Tip: Many disease-specific or disability focused organizations also provide support for caregivers who care for a person affected by that illness or disability.

Give a Mile – Provides flights for people at end-of-life to connect with their loved ones for a final goodbye.

Hope Air – Providing Canadians in financial need with free travel to access medical care far from home.

Chosen Family & Aging Gayfully, programs by the Fondation Émergence supporting LGBTQ+ seniors and family caregivers in Quebec and Canada.

Biblio-Santé Booklets [Quebec] – Quality health related information selected by Quebec public libraries, including:

• Caregivers Booklet – Biblio-santé

Employment Insurance Caregiving Benefits and Leave – Canada.ca